1p36 Deletion Syndrome
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Parent Resources
Listed by State

California

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Team of Advocates for Special Kids is a Parent Training and Information Center
that Parents & Professionals can turn to for assistance in seeking and obtaining
needed early intervention, educational, medical or therapeutic support service for
children.
 
http://www.taskca.org/

Georgia

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PEPP, Inc.is a non-profit corporation dedicated to improving the quality
of life dream for all families of children, youth, and adults with disabilities.
 
www.peppinc.org

Indiana

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The mission of IN*SOURCE is to provide parents, families, and service
providers in Indiana with the information and training necessary to help
assure effective educational programs and appropriate services for children
and young adults with disabilities.
 
www.insource.org

Kansas

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Families Together is a statewide non-profit organization assisting Kansas
families which include sons and/or daughters who have any form of disability.
www.familiestogetherinc.org

Maryland

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Maryland’s most comprehensive online resource for disability-related
information and supports.

www.family-networks.org

New York

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Advocates for Children of New York, Inc. (AFC) works on behalf of children
from infancy to age 21 who are at greatest risk for school-based discrimination
and/or academic failure. These include children with disabilities, ethnic minorities,
immigrants, homeless children, foster care children, limited English proficient
children and those living in poverty. AFC provides a full range of services: free
individual case advocacy, technical assistance, and training for parents, students,
and professionals about children's educational entitlements and due process rights
in New York City.
 
http://www.advocatesforchildren.org/

North Dakota

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Pathfinder Family Center consists of two statewide federally funded education projects:
Pathfinder Parent Training and Information (PTI), serving families of children with
special needs and NDPASS Parent Information Resource Center (PIRC) assisting
families and schools in general education.
 
http://www.pathfinder.minot.com

Oklahoma

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OKLAHOMA PARENT CENTER, INC. is a Parent Training and Information center (PTI)
that serves families of children and young adults from birth to age 22 with all disabilities: 
physical, mental, learning, emotional, and attention deficit disorders.
 
http://www.okparents.org

Pennsylvania

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PEN is Pennsylvania's statewide Parent Training and Information Center.
 
www.parentednet.org

Rhode Island

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The Rhode Island Parent Information Network (RIPIN) is a statewide,
nonprofit agency that provides information, training, support and advocacy
to parents seeking help for their children.
 
www.ripin.org


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