1p36 Deletion Syndrome
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FEATURED
CHILD OF THE MONTH




 
 
 
TJ
 
 

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The child of the month is Tyrone Davison Jr. His parents call him TJ.  TJ and his family reside in Steelton Pennsylvania.  He has four siblings, three sisters and one brother.  TJ was diagnosed with the Chromosome 1p36 deletion when he was about 1 yr old. 
 
 
 

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TJ suffers from Seizures, which he takes Topomax (75mg AM and 75mg PM) and Keppra (3ml AM and 3ml PM) and he is very delayed in motor skills as well as speech.  He can not crawl, walk, or speak.  His family is antisipating the day when he is able to crawl and eventually walk and talk.  The Doctors advised that this is a "wait and see" process. 
 
 
 

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TJ was born on November 25 2003.   He LOVES to watch Spongebob and rock in his rocker!! He does not drink anything but water.  He loves things that lights up, but does not have a real interest in toys.  He has PT and OT.  He also loves to rock in his seat that he has.  TJ is also "failure to thrive" and has been put on the G-Tube twice.  He has had trouble gaining weight.  This year he had to get the G-Tube back in in July (2006) and his weight was at 18.5 lbs and presently he is at 26.5lbs. 
 
 
 

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TJ's mom says.... "TJ is my heart...my joy...I can not imagine my world without him."  Everyone that TJ comes in contact with falls in love with him.
 
 
 
 
 
 
 
 
 
 
 
 

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If you would like your child to be featured
on this page, send your child's picture and
bio to
joni@1p36.com


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